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#171710 - 08/05/11 03:58 PM Re: ultrasound for the heart?/echocardiogram [Re: MaxaLisa]
PositiveDog Offline
Carpal Tunnel

Registered: 02/20/10
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Max doesn't take pepcid or anything like that, does he? My sister's aussie lost a lot of weight while on pepcid during her anemia deficiency illness.

She found out that was the cause (and we joked we would eat them like m&ms if that would make us lose weight.)

I don't remember you mentioning pepcid, but doesn't hurt to ask.
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#171711 - 08/05/11 04:01 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: MaxaLisa]
MaxaLisa Offline

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Originally Posted By: PositiveDog
Max doesn't take pepcid or anything like that, does he? My sister's aussie lost a lot of weight while on pepcid during her anemia deficiency illness.

She found out that was the cause (and we joked we would eat them like m&ms if that would make us lose weight.)

I don't remember you mentioning pepcid, but doesn't hurt to ask.


Oh wow, I've never heard that, it's good to know!

No, he's not on anything like that right now, though I've been thinking maybe zantac might help....not that I want to add another drug.

Thinking a change in abx is needed, and that it's that Staph thing going on with his skin.
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MaxaL (aka LisaT)

Jazmine, mini-mix, 10/18/2011
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Max, 5/2001-2/2012, RIP my partner, my Regal Boy
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#171727 - 08/05/11 05:49 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: MaxaLisa]
MaxaLisa Offline

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Fecal, negative.

folate/b-12, negative.

working on a new theory....
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MaxaL (aka LisaT)

Jazmine, mini-mix, 10/18/2011
Max-n-Indy
Max, 5/2001-2/2012, RIP my partner, my Regal Boy
Indy, 5/1997-10/2010, RIP my friend, my teacher

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#171787 - 08/05/11 10:12 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: MaxaLisa]
LJsMom Offline
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Registered: 02/10/10
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Well crap. I was hoping I could rehome LJ's 6 month supply of enzymes to Max!
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#171827 - 08/06/11 03:25 AM Re: ultrasound for the heart?/adrenals? SIBO? [Re: LJsMom]
MaxaLisa Offline

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He's still using enzymes though smile

His stools are firming up with the tylan, but he isn't feeling any better, really. He has spurts, where he picks up a toy, but it doesn't last. He hasnkt played in weeks frown

This sounds a lot like Max:
http://www.immunedisease.com/about-pi/types-of-pi/common-variable-immunodeficiency-cvid.html


I don't know how you treat immune deficiency, autoimmune, and low cortisol requiring steroids, all at the same time. Lots of abx needed as a start. I am excited about Monday, his first vit C infusion. He will only get the dose for a 20 lb dog to start with, and gradual increases from there. The vet said we should know after the first two treatments if this is really going to help him.
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MaxaL (aka LisaT)

Jazmine, mini-mix, 10/18/2011
Max-n-Indy
Max, 5/2001-2/2012, RIP my partner, my Regal Boy
Indy, 5/1997-10/2010, RIP my friend, my teacher

Health Index
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#171835 - 08/06/11 06:27 AM Re: ultrasound for the heart?/adrenals? SIBO? [Re: MaxaLisa]
bianca Offline
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Registered: 05/14/10
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Lisa that link mentions Gammagard liquid, is that something that could be tried for Max? Or what about a blood transfusion? I don't know what I am talking about but just a crazy thought.

When will he have his second vitamin c infusion?

Sending all my prayers and healing thoughts to your dear boy hugging
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#171864 - 08/06/11 12:36 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: MaxaLisa]
Mary Jane Offline
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Registered: 02/16/10
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Originally Posted By: MaxaLisa


I don't know how you treat immune deficiency, autoimmune, and low cortisol requiring steroids, all at the same time.


Well if you don't know, nobody does. I will say that correcting his hormonal deficiency with low dose steroids in the context of a (selective?) immune deficiency can potentially normalize Max's endocrine system and potentially hit some auto-immune component. Like everything else, God is in the details. The whole balancing act seems really delicate.

If anybody can get the right balance Lisa and her physician team can.

all the best,
Mary Jane

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#171881 - 08/06/11 05:34 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: Mary Jane]
MaxaLisa Offline

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Bianca, crazy ideas, at this point, seem to better than no ideas...

No one seems to think that there is anything that will help with his blood volume, and it's not clear if it's deficient or what.

Mary Jane, thank you. I just feel beaten down right now.

The Tylan is a no go, he is progressively worse on it, in terms of being able to breath, now the days are as bad as the nights frown . It took some hunting to find, but it does seem to have an affect on that pituitary and thyroid axis. I took him off it long ago, thinking it was a problem, and it appears to be. Stools are better, but not much help if he can't breath I guess.

Vit C infusion, once a week for 4 weeks if they respond, and then every other week for a bit, and then monthly for maintenance. I used to sit with Dad during his chemo infusions, so this is kinda weird.

MJ, Plechner's deal is that you fix the cortisol with his protocol, and those immune functions will come up, guess similar to what you are saying. But we aren't doing that, so I don't know what we are doing.
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MaxaL (aka LisaT)

Jazmine, mini-mix, 10/18/2011
Max-n-Indy
Max, 5/2001-2/2012, RIP my partner, my Regal Boy
Indy, 5/1997-10/2010, RIP my friend, my teacher

Health Index
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#171891 - 08/06/11 06:50 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: MaxaLisa]
unloader Offline
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Registered: 01/04/11
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I haven't read the entire thread, but have you ruled out Distemper? Or maybe an IgA issue?

More random thoughts: What about Toxoplasmosis?

I remember reading something about him having a weak rear, I think....so maybe Neosporosis?

Maybe Rocky Mountain spotted fever?


Edited by unloader (08/06/11 06:58 PM)
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#171892 - 08/06/11 07:02 PM Re: ultrasound for the heart?/adrenals? SIBO? [Re: unloader]
MaxaLisa Offline

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Registered: 01/26/10
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Loc: Northern CA
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It's a long thread frown

Interesting thought on the Distemper. I don't get a sense that that's involved.

You nailed it on the IgA though, he's IgA, IgG, and IgM deficient, with corresponding low cortisol. Looks like his thyroid and parathyroid are starting to fall too, so this has got to be pituitary or hypothalamus induced, and it's all very confusing.


There is some degree of both infection and autoimmunity.

I think those two paragraphs are a good summary smile

I'm looking into vasoconstrictors now, in case the blood vessel dilation (if that is what is happening), can be managed by forcing them to contract. Histamine is a big dilator of blood vessels...don't know if that's a good avenue to pursue. If so, vit C can only help.


Edited by MaxaLisa (08/06/11 07:06 PM)
_________________________
MaxaL (aka LisaT)

Jazmine, mini-mix, 10/18/2011
Max-n-Indy
Max, 5/2001-2/2012, RIP my partner, my Regal Boy
Indy, 5/1997-10/2010, RIP my friend, my teacher

Health Index
K9 TBD info and Tick List Links
http://www.rabieschallengefund.org/

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